Georgian Health Minister Zurab Azarashvili on Monday urged the group of protesting parents of children with achondroplasia to continue the discussion over the introduction of treatment methods “at the negotiation table, in a constructive format.”
“It is very difficult to carry on the process, seeking to solve the issue, amid noise and tension,” he noted, emphasizing that “the Ministry’s door is open,” with parents encouraged to participate in the working group on this specific topic.
He went on to say that the groups have been debating the medicine Vosoritide, used to treat achondroplasia.
“We have never refused to treat this rare disease. Budgets were also never emphasized. Budget problems have never been observed. We expressed our willingness to include parents in the protocol creation group. From our end, there will be no delay or problem,” he pointed out.
