Achondroplasia treatment medicine is now available in Georgia. The information about this was initially spread by the parents of one of the children with achondroplasia, and then the information was confirmed by Ivane Chkhaidze, the head of the Iashvili clinic, saying the medicine for achondroplasia has already been received in the Iashvili clinic and its use will begin.
Chkhaidze claimed that children with achondroplasia will be treated with this medicine only in the Iashvili clinic, adding that the medical institution provided information individually to the parents of children with achondroplasia.
The Ministry of Health states that at present, the country has imported the daily dose for four children with achondroplasia syndrome.
Achondroplasia is the most common form of skeletal dysplasia, occurring in about one in every 40,000 births. Achondroplasia impairs the growth of bone in the limbs and causes abnormal growth in the spine and skull.
Parents of children with Achondroplasia have been demanding for months to bring expensive medicine into the country with state funding.
They eventually reached an agreement with the authorities that they would take concrete steps to introduce the only medicine for the treatment of achondroplasia, “Vosoritide.”
The diagnosis of Achondroplasia was added to the list of treatable rare diseases within the framework of the state program. The corresponding change was made in the government decree “On the approval of state health protection programs for 2023”.
“We will continue to fight to get that medicine for our children as soon as possible,” the parents said back then.