The organization ‘Let’s Fight Against DMD’ says patients with Duchenne muscular dystrophy who are on ventilators or have a severe accompanying genetic condition will receive a one-time payment of GEL 10,000 by June 10.
The organization also announced that, starting in June, it will begin purchasing support equipment for children with Duchenne, including wheelchairs, beds, ventilators, and adapted transport tailored to patients’ needs.
The group is calling on all Duchenne patients living in Georgia who require specific support to contact the organization.
“We would like to thank all donors once again. With your support, we will be able to improve the condition of our children and prolong their lives.
“Our main demand to the state remains unchanged: we demand the import of modern medicines for the treatment of Duchenne. Every day of delay is a step backward and is tantamount to a crime,” the organization said.
Last week, a live fundraising marathon organized by members and students of the ‘Protect Iliauni’ movement raised up to GEL 2 million for Duchenne patients.
At the same time, parents of children with Duchenne muscular dystrophy have spent more than 40 days outside the Government Administration, demanding that the authorities allow the import of modern, life-saving medicines for their children.
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Parents of children with Duchenne vow to continue protests until medication is funded
