Parents of children with Duchenne muscular dystrophy, who protested for 45 consecutive nights outside the Government Administration demanding funding for treatment, say they are ending their protest following an agreement with the government.
One of the parents, Zakro Gvishiani, said they had achieved their goal after a second meeting with Prime Minister Irakli Kobakhidze.
“Victory has been achieved in this worthy and great struggle. I congratulate all the parents, all the patients, our supporters who stood with us in this great and worthy struggle. At today’s meeting, a decision was reached to create a permanent working group that will work on specific medicines. We are talking about two medicines. There will be active work with pharmaceutical companies and, ultimately, a decision will be made in accordance with the best conditions,” Gvishiani said.
He said discussions with pharmaceutical companies are ongoing and that a final decision is expected in around two months, based on the best interests of children. Gvishiani did not name the two medicines under consideration, saying disclosure at this stage could disrupt the process, but noted that a final decision will cover two out of four medicines requested by parents.
Parents state they are ending the protest and returning to a working format following the agreement.
Another parent, Kakha Tsikarishvili, said daily protests would stop, while a planned Sunday march will be held as a “march of gratitude.
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