• ABOUT US
    • History
    • Our Team
    • Advertising
    • Subscription
  • CONTACT US
Georgia Today
No Result
View All Result
  • News
  • Politics
  • Business & Economy
  • Social & Society
  • Sports
  • Culture
  • News
  • Politics
  • Business & Economy
  • Social & Society
  • Sports
  • Culture
No Result
View All Result
Georgia Today
No Result
View All Result

Parents of children with Achondroplasia demand medicine be provided before September

by Georgia Today
May 1, 2023
in Highlights, Social & Society
Reading Time: 1 min read
Parents of children with Achondroplasia demand medicine be provided before September

Parents of children diagnosed with achondroplasia demand that the government issue a decree stating that the drug Vosoritide will be imported no later than the 1st of September.

At the rally held on April 29, the parents announced the deadline for bringing the drug to Georgia. They claim that the medicine should be provided to all children diagnozed with achondroplasia in Georgia, regardless of their age.

As the parents say, they distrust the Minister of Health Zurab Azarashvili and his deputy Tamar Gabunia and therefore demand a meeting with the Prime Minister Irakli Garibashvili.

They claim that their protest will continue until the Prime Minister signs the relevant decree.

Another rally outside the government administration demanding funding for the drug for children diagnosed with achondroplasia is planned on Monday, May 1st, during the government session.

The parents have been holding protests for several months, demanding the import of necessary medicine for their children in Georgia and funding from the state.

In response to the request of the parents, Irakli Garibashvili stated at the government meeting on April 24 that there is no problem of financing medicine in the country, as it costs about 10 million. However, the government is yet to take this step as it needs additional medical evidence to introduce the drug.

The matter concerns the drug Voxzogo (active ingredient – Vosoritide), which was authorized by the US Food and Drug Administration (FDA) and the European Medicines Agency (EMA) in 2021.

This drug is the first to be used to treat the syndrome and its symptoms. Parents say that it is only effective when taken up until the age of 18.

Related Story: Parents of children with Achondroplasia demand appropriate medicines be imported & funded

Tags: Children with achondroplasiaParents of children with achondroplasia
ShareShareTweet

Related Posts

Imedi TV experiences 45-minute broadcast outage
News

Imedi TV experiences 45-minute broadcast outage

October 13, 2025
Zurabishvili attends Prague ceremony honoring journalist Mzia Amaglobeli
News

Zurabishvili attends Prague ceremony honoring journalist Mzia Amaglobeli

October 13, 2025
Photo by the author
Editor's Pick

Dancing a Nation into Being: The Sukhishvili Ballet at 80

October 12, 2025

Recommended

Putin, Xi, and allied leaders mark Russia’s Victory Day at Moscow parade

Putin, Xi, and allied leaders mark Russia’s Victory Day at Moscow parade

5 months ago
Experience Seamless Connectivity with Silknet eSIM in Georgia

Experience Seamless Connectivity with Silknet eSIM in Georgia

1 year ago
Champion Karateka Luka Khvedeliani on the Benefits of Georgian Karate for Georgia’s Youth

Georgia to Celebrate First Europe Day with European Union Candidate Status

1 year ago
Georgian Foreign Minister Holds Farewell Meeting with French Ambassador to Georgia

Georgian Foreign Minister Holds Farewell Meeting with French Ambassador to Georgia

3 years ago
Natia Mezvrishvili on Dealing with 2 Political Giants

Natia Mezvrishvili on Dealing with 2 Political Giants

3 years ago
Giorgi Gakharia: We were Told We Were Capable of Nothing – It’s All a Lie and Ukraine is a Great Example of This

Giorgi Gakharia: We were Told We Were Capable of Nothing – It’s All a Lie and Ukraine is a Great Example of This

4 years ago
GT Interview with Giorgi Badridze

GT Interview with Giorgi Badridze

4 years ago
Russo-Ukrainian War and Georgia – Analysis from security expert Kakha Kemoklidze

Russo-Ukrainian War and Georgia – Analysis from security expert Kakha Kemoklidze

4 years ago

Navigation

  • News
  • Politics
  • Business & Economy
  • Social & Society
  • Sports
  • Culture
  • International
  • Where.ge
  • Newspaper
  • Magazine
  • GEO
  • OP-ED
  • About Us
    • History
    • Our Team
    • Advertising
    • Subscription
  • Contact

Highlights

Court sentences poet Zviad Ratiani to two years in prison after amending charge

Doctor and academician Giorgi Chakhunashvili detained in connection with October 4 events

Babiš’s Big Return: Czech Elections Reshape Political Landscape, Georgian Dream Unlikely to Reap any Benefits

Exhibition of Wekua and Djorjadze’s Works from the ATINATI Collection at the ATINATI Cultural Center

13 more people charged in connection with October 4 violence at Presidential Palace

UN Human Rights Council adopts resolution on Georgia’s occupied territories

Trending

Experience Seamless Connectivity with Silknet eSIM in Georgia
Business & Economy

Experience Seamless Connectivity with Silknet eSIM in Georgia

by Georgia Today
June 26, 2024

Why Silknet's eSIM could be your top choice in Georgia  Since its introduction, eSIM technology has become...

Photo by the author

Virtuosity and Versatility: Marc-André Hamelin Opens Tbilisi Piano Festival 2024

May 30, 2024
  • Where.ge
  • Newspaper
  • GEO
  • Magazine
  • Old Website

2000-2024 © Georgia Today

No Result
View All Result
  • News
  • Politics
  • Business & Economy
  • Social & Society
  • Sports
  • Culture
  • International
  • Where.ge
  • Newspaper
  • Magazine
  • GEO
  • OP-ED
  • About Us
    • History
    • Our Team
    • Advertising
    • Subscription
  • Contact

2000-2024 © Georgia Today